Kayla was diagnosed with Juvenile Myoclonic Epilepsy (JME) when she was 11 years old, but nothing prepared her parents for the loss they would later experience. Bernard and Edana share their daughter’s story, including how awareness about SUDEP can help families and individuals prevent SUDEP. Every conversation matters, and awareness is the first step toward prevention. Join us in honoring those lost and raising awareness of epilepsy-related deaths worldwide. https://www.epilepsy.com/complicatio
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Kayla was diagnosed with Juvenile Myoclonic Epilepsy (JME) when s…
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Ep.5 Myoclonic Seizures. Different films. Different seizures. Same goal: understanding. We’ve worked with young people who live with epilepsy to create a short film that shows what myoclonic seizures can look like, and how the people around them can help. This film is here to help you and your child explain their epilepsy to friends, family, teachers, anyone who supports them. Because when people understand, they’re better able to respond with care and confidence. We understand your child’s seiz
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Ep.5 Myoclonic Seizures. Different films. Different seizures. Same go…
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KSI, a 30-year-old man with a history suggestive of juvenile myoclonic epilepsy, is in his bedroom filming a Sunday Q&A with his dad. When he plays “Get Hyper” by droideka he suddenly develops repeated, brief, bilateral myoclonic jerks of his arms and shoulders, occurring every few seconds. He remains conscious but the jerks are ongoing and escalating. His father, who’s catching an epileptic whine, calls an ambulance. On arrival, KSI is alert but continues to have frequent myoclonic jerks. His o
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