Parry-Romberg syndrome, also known as progressive hemifacial atrophy, is a rare condition that causes tissue deterioration in a person’s face. Parry-Romberg syndrome affects the soft tissue and ...

His diagnosis, Parry-Romberg syndrome, only affects one in 250,000 people. Over time, muscle and fat in the face shrinks while the bones may become thin and change shape. The condition may not ...

Gillian was not born this way. Once a chubby baby with a perfectly symmetrical face, it was only when she turned 12 and got ringworm that Parry-Romberg syndrome began to take over. Gillian ...

That was the million-dollar question and in 2017, I finally got my answer. I have Parry-Romberg Syndrome, a rare degenerative disorder that slowly deteriorates the skin, muscle, and bone of half ...

Lukas Caldwell was diagnosed with Parry-Romberg syndrome at age 7. Lukas Caldwell is a 19-year-old college student with nearly 3 million followers on TikTok and Instagram. Caldwell, a Nebraska ...

Parry-Romberg syndrome, also called “progressive facial hemiatrophy” is a condition that causes a progressive, self-limited withering of the skin as well as subcutaneous tissue on one side of ...

Want to understand Parry-Romberg syndrome symptoms, its rarity, possible treatments, and how social media helps spread awareness? Lukas Caldwell, a 20-year-old living with the condition ...

Teen documents life with rare facial disorder, raises awareness to millions Lukas Caldwell was diagnosed with Parry-Romberg syndrome when he was 7 years old. Now, he uses social media to share his ...