Parry-Romberg syndrome, also known as progressive hemifacial atrophy, is a rare condition that causes tissue deterioration in a person’s face. Parry-Romberg syndrome affects the soft tissue and ...

His diagnosis, Parry-Romberg syndrome, only affects one in 250,000 people. Over time, muscle and fat in the face shrinks while the bones may become thin and change shape. The condition may not ...

Want to understand Parry-Romberg syndrome symptoms, its rarity, possible treatments, and how social media helps spread awareness? Lukas Caldwell, a 20-year-old living with the condition ...

Young Queenslander Kiara Higgins says the mirror used to be her worst enemy because of rare disorder, Parry-Romberg syndrome. “Smash face!” an older boy from a different school called out.

Lucy, from Moota Bay, South Australia, was first diagnosed with Parry Romberg syndrome — a rare disease whereby the immune system causes the tissues beneath the skin to shrink — at eight ...